Evelyn's Enthusiastic Blog

I have changed what I want to be when I grow up more then numbers can count. I started off wanting to be an Artist, then a Pro Athlete, then I decided I can’t choose between the two, so I was just going to be both. After I found out how hard it actually is to become a famous artist, and even if I’m good enough women athletes don’t make very much in hockey, I decided I was going to be a doctor. It stuck with me for a while because I wanted to be rich and doctors make a lot of money, until I realized I have to see guts and blood for the kind of doctor I wanted to be. After that I went awhile telling myself “I have tons of time until I need to pick a job.” Until one day I said “No Evelyn, you need to figure out your job right now.” I thought being a lawyer would be cool because of Mitchel in Modern Family, but that didn’t last very long, because I knew I would never forgive myself if I lost a case. Now I want to be a personal therapist. I took time to learn myself a little and found out I actually love helping people with all of their problems. Right now for a lot of people I’m their “therapeutic friend” and it is one of my favorite things in life right now. I’ve seen so many people take my advice, and go from super sad to super happy! I can’t explain how good it feels after helping someone with their problems.

I am from the black puck marks
on all my old equipment.

From my hips swaying back and forth
to the Dora theme song.

I am from blowing off
my flaming marshmallow.

Touching the smooth water
trying not to fall
behind my boat.

From the bullet
my grandfather took to the leg
for our country.

I am from “What a goal!”
or “How did that go in?”

And watching my house go from bland
to bedazzled
every holiday.

I am from my seven fur-siblings
that brightened up
each day.

“Clean you room.”
and “Unload the dishwasher.”

From doing makeup tutorials
with my dinner.

I am from talent shows
with heels four sizes too big.

Big black eyes
you can never say no to.

From the pencil grinding
on the page
making a beautiful picture.

I am from the people
who always believe in me
even when I don’t.

There are so many fun things to do outside in winter. One thing I really love is sledding. Sometimes I go with my friends down the hill behind the Winchester arena or in Ottawa with my grandfather. When I go with my friends, we used to link our arms together and go down the path that was pure ice, (it was not the smartest idea we’ve ever came up with). When I go with my grandfather we have a race down the hill, he unfortunately always wins. Another thing I like to do is build a snowman. It’s been a tradition in my family as long as I can remember to build a snowman. When I was younger, my parents would do all the hard work of rolling snowballs, and my brother and I would decorate him. After we would always go inside and drink hot chocolate. The last thing I Have a lot of fun doing is skating on an ODR. My favourite one to go to is the Canal. I go with my grandparents. My dad can’t stop for the life of him so it’s funny watching him grab onto my mom to try and slow down. Eventually Ted (my step grandfather) and I get tired of skating so slow so we speed up and show off to everyone.

Hutchinson-Gilford Progeria syndrome (HGPS), is an extremely rare genetic disorder that affects every 1 in 8 million births. 

 https://www.newz.com/wp-content/uploads/2021/06/progeria.png

 HGPS has symptoms that resemble the onset of ageing young. This disease typically develops in childhood. Most of the time, children with HGPS appear normal at birth. Symptoms usually start to occur in the first year. Characteristic features include an abnormally large head for the proportions of the face, a slender nasal ridge and tip small mouth with a thin vermilion on the lips, and a jaw considerably smaller than the average humans. Colloquial features consist of loss of subcutaneous fat (beneath or under the layers of skin), delayed tooth eruption (if the growing pattern is completely off or there is no growth by 18 months), as well as loss of primary teeth, irregular skin with small outpouchings of the abdomen and upper thighs, alopecia (loss of hair), deformed thickened or discolored fingernails and toenails, coxa valga (the top of the femur, there is a knob of bone sticking off at an angle), and progressive joint contactors. Later findings contain hearing loss, dental crowding, and partial lack of secondary tooth eruption. Physical and mental development is normal. People with HGPS usually have a life span of early to mid-teens. This happens because this is generally the time they start to have either cardiac disease (heart failure) or strokes.  

 This disease is both heartbreaking and unfortunate for themself and the family. I could never imagine what these people go through.